Thank you for responding to our survey about the provision of care for Adolescent and Young Adult (AYA) cancer patients and survivors across the EU.

Cancer remains a major public health challenge in Europe, with incidence and mortality rates continuing to rise. In response, the European Commission has placed cancer high on the policy agenda through initiatives such as Europe’s Beating Cancer Plan, a flagship of the European Health Union, and the EU Cancer Mission. These efforts reflect a strong political commitment to prevention, early detection, diagnosis and treatment, and improving quality of life for patients and survivors. Both initiatives recognise the unique needs of vulnerable groups, including AYAs, who face distinct clinical and psychosocial challenges that require tailored, multidisciplinary care.

This survey is being conducted by ICF at the request of the European Commission as part of a study aimed at developing an evidence-based model of quality AYA cancer care and mapping national provision of AYA cancer care across the EU. The findings will inform EU-wide and country-specific recommendations to drive policy change and improve outcomes for AYA patients, survivors, and society as a whole.

For more information on this study, please see the Endorsement Letter from the European Commission, Directorate-General for Health and Food Safety.

Through this survey, we aim to:

• Explore the current provision of AYA cancer care in your country;
• Understand your views on barriers, enabling factors, and good practices;
• Collect information to develop evidence-based recommendations.

This questionnaire takes approximately 60 minutes to complete in total. However, you will be able to select the specific dimension(s) of AYA cancer care that you wish to address, depending on your expertise. You do not need to complete the questionnaire in one sitting, if you press the ‘Save’ button you will be provided with a personalised link that will allow you to return to your response and edit it, until you press the ‘Finish’ button.

Please note that the survey will remain open until May 12.

Your responses will be shared with the European Commission only in aggregate format as part of a report, and no individual attribution will be made to your organisation. This questionnaire does not collect information such as location data or IP addresses. For more information, please review the Data Protection Notice for this study.

We also wish to note that the JANE 2 Network of Expertise on AYAs with Cancer is progressing in parallel to this study. For more information on how both initiatives complement each other, please consult this joint communication.

Thank you for your valuable contribution.